Oftentimes, the spouse who provides the care looks in as bad a shape—or even worse—than the partner who is ill. Our team has been trying to find ways to encourage caregivers to objectively screen themselves for burnout. It is a difficult thing to witness and even more challenging to figure out how to help them.
Do you know how to effectively screen for caregiver burden or a tool we could utilize? We thought a caregiver burden scale or a burden of care questionnaire that members self-administer would be best. The results might help us convince some of the older adults we serve that it may be time to enlist the services of a home care agency.
What a great observation! It is all too common for a caregiver to experience a health crisis of their own. This highly regarded caregiver burden inventory questionnaire screens for 22 items. This paper clearly clarifies the meaning of caregiver burden.
It is necessary for healthcare professionals and caregivers to clearly understand the meaning of caregiver burden from the perspective of the caregiver. Nurses can now assess caregiver burden by using measurement tools and thus develop interventions and support mechanisms to support caregivers.
This concept analysis provides information which can be used in nursing practice, education, research and management. Having a deep understanding of the concept of caregiver burden is key to understanding caring from the perspective of the caregiver. Healthcare organizations need to implement support structures to alleviate caregiver burden on caregivers. Caregivers play a vital role in reducing costs and resources on the healthcare system by caring for loved ones at home.
Therefore, it is essential to take care of caregivers to reduce the long-term effects of caregiver burden. Further studies are recommended to determine caregiver burden from the perspective of the care recipient. Additionally, developing new strategies for specific diseases and expanding the research scope of caregiver burden are also critical.
The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. Zhu Liu: Conceptualization, Methodology, Writing - original draft. Jie Tan: Conceptualization, Resources, Supervision. The authors acknowledge the support of the librarians at the Institute of Technology Tralee, Co. Peer review under responsibility of Chinese Nursing Association. National Center for Biotechnology Information , U.
Int J Nurs Sci. Published online Jul Kerry, Ireland Find articles by Catrina Heffernan. Author information Article notes Copyright and License information Disclaimer. Jie Tan: moc. This article has been cited by other articles in PMC. Associated Data Supplementary Materials Multimedia component 1.
Abstract Objective Caregiver burden is used frequently within the nursing literature. Results At total of 33 articles were included.
Conclusion A definition of caregiver burden was developed. Introduction With an aging population that continues to grow and the number of people living with chronic disease increasing, health care is shifting from hospital to community and family [ 1 , 2 ]. Methods 2. Selecting the concept The concept of caregiver burden is significant in nursing science and practice.
Open in a separate window. Results 3. Uses of the concept Caregiver burden can be defined as the strain or load borne by a person who cares for a chronically ill, disabled, or elderly family member [ 13 ]. Relevant concepts Related concepts are usually terms that are used interchangeably with a concept and have similar meanings which can be distinguished by conceptual analysis [ 11 ].
The defining attributes of caregiver burden The key aspect of a concept analysis is to determine the defining attributes. Self-perception perceived by an individual Self-perception is about the caregiver reflecting on personal experience during the caregiving process. Multifaceted strain The fact that caregiver burden is multidimensional has been extensively demonstrated in the literature. Over time Caregiver burden, in essence, is not always static [ 28 , 35 , 39 , 40 ]. Cases According to Walker and Avant the description of cases includes the facilitation of and in-depth understanding of the concept under study.
Model case A model case is a real-life example containing all the defining attributes in the clinical scenario [ 41 ]. Related case Related cases refer to the examples that are related to a concept, but do not contain all of the attributes of the concept [ 41 ]. Borderline case According to Walker and Avant [ 41 ], the borderline case includes the majority of the defining attributes of the concept.
Contrary case Contrary case, as opposed to the model case, does not contain any of the defining attributes of the concept [ 41 ]. Antecedents of caregiver burden Antecedents are events that take place before the occurrence of the concept [ 41 ]. Insufficient financial resources The cost of care is one of the key indicators of caregiver burden [ 42 ]. Multiple responsibility conflict The majority of caregivers are spouses, children, or relatives who perform multiple roles.
Lack of social activities Caregiver burden is usually experienced by those who provide long-term care to others [ 37 ]. Consequences of caregiver burden Consequences are the factors derived from the literature that result from the concept [ 41 ].
Decreased care provision One of the consequences of caregiver burden is reduction in care provision. Physical and psychological health deterioration Caregivers devote a large amount of time and energy to caring for their loved ones while seldom caring about themselves.
Empirical referents Identifying empirical referents is an essential step in conceptual analyses used to show how concepts are measured or quantified in reality. Table 1 The tools used to measure caregiver burden.
Discussion The literature concluded that caregiver burden is a series of negative responses that occur while undertaking the role of primary caregiver.
Limitations of the study Caregiver burden may vary across caregivers caring for patients with different diseases or at different stages [ 61 ].
Conclusion Clarifying the concept of caregiver burden is essential for helping healthcare professionals and the general population to obtain a better understanding of caregiver burden.
Future implications in nursing research Having a deep understanding of the concept of caregiver burden is key to understanding caring from the perspective of the caregiver.
Declaration of competing interest There are no conflicts of interest. Acknowledgement The authors acknowledge the support of the librarians at the Institute of Technology Tralee, Co. Footnotes Peer review under responsibility of Chinese Nursing Association. Appendix A.
Supplementary data The following is the Supplementary data to this article: Multimedia component 1: Click here to view. References 1. Roberts A. The labor market consequences of family illness. J Ment Health Pol Econ. Sharpe L. The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers.
Psycho Oncol. Stamataki Z. Support Care Canc. Cui J. Needs of family caregivers of advanced cancer patients: a survey in Shanghai of China. Eur J Canc Care. Gharavi Y. Evaluation of an interaction-skills training for reducing the burden of family caregivers of patients with severe mental illness: a pre-posttest design.
BMC Psychiatr. Lee G. PloS One. Pinquart M. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis.
Psychol Aging. Dumont S. Caring for a loved one with advanced cancer: determinants of psychological distress in family caregivers.
J Palliat Med. Tamizi Z. Defining the concept of family caregiver burden in patients with schizophrenia : a systematic review protocol. McCarthy G. Springer Publishing Company; Nursing concept Analysis : applications to research and practice. New York. Walker L. Strategies for theory construction in nursing. Pearlin L. Stressors and adaptation in late life. In: Gatz M. American Psychological Association; Stucki B. American Council of Life Insurers; Can aging baby boomers avoid the nursing home: long-term care insurance for" aging in place.
Hoenig J. The schizophrenic patient in the community and his effect on the household. Int J Soc Psychiatr. Zarit S. Relatives of the impaired elderly: correlates of feelings of burden. Collins C. Nurs Clin. PMID: Nijboer C. Hornby A. Oxford University Press; Oxford: Bastawrous M. Caregiver burden-A critical discussion. Int J Nurs Stud. Costa-Requena G. Caregiver burden in end-of-life care: advanced cancer and final stage of dementia. Palliat Support Care. Chou K.
Caregiver burden: a concept analysis. J Pediatr Nurs. Primary caregivers of schizophrenia outpatients: burden and predictor variables. Psychiatr Res. Sisk R. Caregiver burden and health promotion.
Llanque S. Nurs Forum. Bhattacharjee M. Factors affecting burden on caregivers of stroke survivors: population-based study in Mumbai India Ann Indian Acad Neurol. De Korte-Verhoef M. Burden for family carers at the end of life; A mixed-method study of the perspectives of family carers and GPs. BMC Palliat Care. Yoon S. Modifiable factors associated with caregiver burden among family caregivers of terminally ill Korean cancer patients. Lee Y. Trajectories of caregiver burden and related factors in family caregivers of patients with lung cancer.
Limitations: Because burden is a multidimensional construct defined internationally with a multitude of other terms, only those studies whose title, abstract or keywords contained the search terminology developed for this review were identified for retrieval.
Results: The construct of caregiver burden is not standardized, and many terms are used to describe burden. A caregiver is also identified as a carer. Instruments exist in multiple languages and have been tested in multiple populations. A total of papers, experimental and non-experimental in nature, were included in the review. The majority of papers were non-experimental studies that tested or used a caregiver burden screening tool.
Because of the nature of these papers, a meta-analysis of the results was not possible.
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